Paraganglioma (adrenaline-producing tumor outside the adrenal gland)
Links to websites
www.pheo-para-alliance.org: Patient information and advocacy site for those with pheochromocytomaPheochromocytoma - a disease where too much adrenaline is being made by an adrenal tumor and paragangliomaParaganglioma - a disease where too much adrenaline is being made by a tumor outside the adrenal glands
www.vhl.org: Information regarding von Hippel-Lindau syndrome
www.genetests.org: Information regarding approved molecular genetic diagnostic laboratories
www.cancer.gov/clinicaltrials: Information regarding clinical trials.